Make your own free website on Tripod.com

Holding On to Hope

Xeroderma Pigmentosum
Home
AD
AP
BDS
CML
CD
CF
DJS
EB
HD
HGPS
IV
KWS
MNS
MS
NS
OS
PD
QF
TS
XP



Xeroderma pigmentosum (XP) is a group of rare inherited skin disorders characterized by a heightened reaction to sunlight (photosensitivity) with skin blistering occurring after exposure to the sun. In some cases, pain and blistering may occur immediately after contact with sunlight. Acute sunburn and persistent redness or inflammation of the skin (erythema) are also early symptoms of XP. In most cases, these symptoms may be apparent immediately after birth or occur within the next three years. In other cases, symptoms may not develop until later in childhood or, more rarely, may not be recognized until adulthood. Other symptoms of XP may include discolorations, weakness and fragility, and/or scarring of the skin.

Xeroderma pigmentosum affects the eyes as well as the skin, has been associated with several forms of skin cancer, and, in some cases, may occur along with dwarfism, mental retardation, and/or delayed development

Credit to - www.rarediseases.org

xp1.jpg

Please help the poor people with Xeroderma Pigmentosum by donating to the charity listed below.

Xeroderma Pigmentosum Society, Inc.
437 Snydertown Rd
Craryville,NY 12521

Website: http://www.xps.org
Phone: 877-977-2873
Email: Pat@xps.org

Here is another charity/organization to help out Xeroderma Pigmentosum:

Univ of Medicine and Dentistry of NJ
Department of Path
Newark, NJ 07103-2714

Phone: 973-972-4405



Here are some websites you can go to and learn more about Xeroderma Pigmentosum:


Never forget there is hope.